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Tokenism in patient engagement [PDF]

open access: yesFamily Practice, 2016
Patient engagement throughout research is a way to generate more relevant patient-important research questions, methods and results with the ultimate aim of facilitating translation of research into practice. Tokenism is defined as the practice of making perfunctory or symbolic efforts to engage communities or patients.We wanted to explore how tokenism
Amanda E Hoffmann   +5 more
openaire   +3 more sources

The Importance of Patient Engagement [PDF]

open access: yesGenetic Testing and Molecular Biomarkers, 2013
We read with interest Terry's recent editorial, “Don't Just Invite Us to the Table: Authentic Community Engagement” (Terry 2013). Terry makes the key point that there are merits to community engagement in developing policies affecting individuals and their families undergoing clinical exome and genome sequencing that can generate incidental findings ...
Janet K. Williams   +4 more
openaire   +3 more sources

Patient engagement [PDF]

open access: yesEuropean Heart Journal, 2017
Published on behalf of the European Society of Cardiology. All rights reserved. © The Author 2017.
Graham, Ian   +5 more
openaire   +4 more sources

Seeing is Engaging: Vlogs as a Tool for Patient Engagement [PDF]

open access: yesThe Patient - Patient-Centered Outcomes Research, 2017
Video blogs (‘vlogs’ – pronounced as one syllable) are a popular platform for conveying know-how online and can be used as a tool for patient engagement. It can be challenging to engage patients in their own care, and the unique attributes of vlogs overcome some of the barriers to engagement such as high treatment burden and a lack of the sense of ...
Albert W. Wu   +5 more
openaire   +3 more sources

The Patient Engagement Prescription [PDF]

open access: yesNorth Carolina Medical Journal, 2015
Written by a volunteer patient advisor, this issue brief provides at 50-foot view of patient engagement as seen through the eyes of various stakeholders including payers, providers, and patients. The benefits and barriers are noted, and the undeniable need for engaged patients is discussed.
openaire   +3 more sources

eHealth for Patient Engagement: A Systematic Review [PDF]

open access: yesFrontiers in Psychology, 2016
eHealth interventions are recognized to have a tremendous potential to promote patient engagement. To date, the majority of studies examine the efficacy of eHealth in enhancing clinical outcomes without focusing on patient engagement in its specificity.
Serena eBarello   +7 more
openaire   +6 more sources

Patient engagement with psychological safety

open access: yesDialogues in Health, 2023
Psychological safety is a multidimensional, dynamic phenomenon that concerns team members' perception of whether it is safe to take interpersonal risks at work. It is particularly important within health care teams who need to work interdependently to coordinate safe patient care within a highly complex, variable and high-stakes work environment.
openaire   +3 more sources

Making Patient Engagement a Reality [PDF]

open access: yesThe Patient - Patient-Centered Outcomes Research, 2017
Patients are increasingly recognised as the true customers of healthcare. By providing insights and perspectives, patients can help the wider healthcare community better understand their needs and ultimately enhance the value of healthcare solutions being developed.
openaire   +3 more sources

HowNotToDoPatientEngagement: The Engaging with Purpose Patient Engagement Framework based on a Twitter Analysis of Community Perspectives on Patient Engagement

open access: yesResearch Involvement and Engagement, 2023
Abstract Background: Evaluation of patient engagement practices are frequently researcher-driven, researcher-funded and asymmetric in power dynamics. Little to almost no literature exists that documents patient experiences in patient engagement that are organic and non-institutional.
Brianna Dunstan   +4 more
openaire   +3 more sources

Meaningful patient engagement [PDF]

open access: yesBJPsych Advances, 2018
SUMMARYHolding a medical degree does not magically protect the individual from ever becoming unwell or needing medical help. However, for various reasons, most of which relate to personal, professional and institutional stigma, doctors are often denied the care they so readily provide to their own patients.
openaire   +1 more source

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