Results 21 to 30 of about 16,806,898 (405)

Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement

Health Expectations, 2021
To shorten the Patient Engagement In Research Scale (PEIRS) to its most essential items and evaluate its measurement properties for assessing the degree of patients’ and family caregivers’ meaningful engagement as partners in research projects.
Clayon B. Hamilton, A. Hoens, Annette M McKinnon, Shanon McQuitty, Kelly English, L. Hawke, Linda C. Li   +6 more
semanticscholar   +1 more source

Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities

Research Involvement and Engagement, 2023
Background Authentic researcher-youth partnerships in patient-oriented research (POR) where the research responds to the needs expressed by youth themselves are essential to make research meaningful.
Samantha Yimeng Dong, Linda Nguyen, Andrea Cross, Amanda Doherty-Kirby, Jessica Geboers, Dayle McCauley, Alice Kelen Soper, Amanda St. Dennis, Danny Steeves, Natasha Trehan, Jan Willem Gorter   +10 more
doaj   +1 more source

Identifying the factors affecting ‘patient engagement’ in exercise rehabilitation

BMC Sports Science, Medicine and Rehabilitation, 2021
Background Despite the proven benefits of exercise rehabilitation for numerous health conditions, musculoskeletal injuries and recovery from surgery, patient adherence to such programs is reported to often be less than 35%.
J. L. Teo, Zhen Zheng, S. Bird
semanticscholar   +1 more source

Tokenism in patient engagement [PDF]

Family Practice, 2016
Patient engagement throughout research is a way to generate more relevant patient-important research questions, methods and results with the ultimate aim of facilitating translation of research into practice. Tokenism is defined as the practice of making perfunctory or symbolic efforts to engage communities or patients.We wanted to explore how tokenism
David L, Hahn, Amanda E, Hoffmann, Maret, Felzien, Joseph W, LeMaster, Jinping, Xu, Lyle J, Fagnan   +5 more
openaire   +2 more sources

Patient engagement, involvement, or participation - entrapping concepts in nurse-patient interactions: A critical discussion.

Nursing Inquiry, 2022
The importance of patients taking an active role in their healthcare is recognized internationally, to improve safety and effectiveness in practice. There is still, however, some ambiguity about the conceptualization of that patient role; it is referred ...
Teresa A. Jerofke-Owen, G. Tobiano, A. Eldh   +2 more
semanticscholar   +1 more source

Patient-centered benefit-risk analysis of transcatheter aortic valve replacement [version 4; peer review: 2 approved]

F1000Research, 2020
Background: Aortic stenosis (AS) treatments include surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). Choosing between SAVR and TAVR requires patients to trade-off  benefits and risks.
Kevin Marsh, Natalia Hawken, Ella Brookes, Carrie Kuehn, Barry Liden   +4 more
doaj   +1 more source

Patient and researcher experiences of patient engagement in primary care health care research: A participatory qualitative study

Health Expectations, 2022
Studies have highlighted common challenges and barriers to patient engagement in research, but most were based on patient partners' or academic researchers' experiences.
Sophie Béland, Mireille Lambert, A. Delahunty-Pike, Dana Howse, Charlotte Schwarz, M. Chouinard, Kris Aubrey-Bassler, F. Burge, S. Doucet, A. Danish, Olivier Dumont-Samson, Mathieu Bisson, A. Luke, M. Macdonald, André Gaudreau, J. Porter, Donna Rubenstein, Véronique Sabourin, Cathy J. Scott, Mike Warren, Linda Wilhelm, C. Hudon   +21 more
semanticscholar   +1 more source

Unlocking sociocultural and community factors for the global adoption of genomic medicine

Orphanet Journal of Rare Diseases, 2022
Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak, Nicola Bedlington, Ayesha Gadson, Alastair Kent, Aiedah Abdul Khalek, Luke Rosen, Malisa Rust, Mohd. Farooq Shaikh, Meng Yoe Tan, Samuel Agyei Wiafe, Gareth Baynam, Charles A. Steward   +11 more
doaj   +1 more source

A Systematic Review of the Role of Telemedicine in Blood Pressure Control: Focus on Patient Engagement

Current Hypertension Reports, 2022
To systematically review and synthesize the existing evidence on the effects of different telemedicine interventions on improving patient engagement among patients with hypertension.
A. Khanijahani, Nesli Akinci, Eric Quitiquit   +2 more
semanticscholar   +1 more source

Measuring organisational readiness for patient engagement (MORE) : an international online Delphi consensus study [PDF]

, 2015
Date of Acceptance: 28/01/2015. © 2015 Oostendorp et al.; licensee BioMed Central. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits ...
A Coulter, A Coulter, A Johnson, Amy Lloyd, Australian Commission on Safety and Quality in Health Care Sydney, BJ Weiner, BJ Weiner, C Tomson, CM Shea, E King, F Hasson, F Légaré, G Elwyn, G Elwyn, G Elwyn, G Elwyn, Glyn Elwyn, I Williams, Institute for Family Centered Care and the American Hospital Association, J Gallivan, JK Rao, JP Kotter, K Gravel, KL Carman, L Moret, Linda JM Oostendorp, Marie-Anne Durand, MK Wynia, MORI Ipsos, PJ Barr, S Dentzer, S Frampton, S Keeney, SN Hofstede, SN Hofstede, Strategy Unit - NHS England   +35 more
core   +3 more sources