Results 71 to 80 of about 16,806,898 (405)

Co-creation of the Global Patient Experience Data Navigator: a multi-stakeholder initiative to ensure the patient voice is represented in health decision-making

Research Involvement and Engagement, 2023
Background Putting patients’ needs and priorities at the forefront of healthcare initiatives and medical product development is critical to achieve outcomes that matter most to patients.
Tom Willgoss, Omar A. Escontrias, Carole Scrafton, Elisabeth Oehrlein, Victoria Livingstone, Fiona C. Chaplin, Maddalena Benivento, Hayley Chapman, Nicholas Brooke   +8 more
doaj   +1 more source

Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation

Research Involvement and Engagement, 2021
Background The effective impact of patient engagement (PE) across the medicines development continuum is widely acknowledged across diverse health stakeholder groups, including health authorities; however, the practical applications of how to implement ...
David Feldman, Paola Kruger, L. Delbecque, Ashley Duenas, Oana Bernard-Poenaru, Séverine Wollenschneider, Nick Hicks, Janine Ann Reed, I. Sargeant, C. Pakarinen, A. Hamoir, Oana Katherine David Grace Gorbenko Jim Nick Vivian Ben Bernard-Poenaru Deane Feldman Fox Oleksandr Hartke, Oana Bernard-Poenaru, K. Deane, David Feldman, G. Fox, Gorbenko Oleksandr, Jim Hartke, Nick Hicks, Vivian Larsen, B. Missbach, Claire Nolan, N. Ratcliffe, Carole Scrafton, Merlin Williams, Ashley Dagmar Dominique Janelle Janet Jessica Laure Paola Duenas Kaschinski Hamerlijnck Goins Peterson Scott, Ashley Duenas, D. Kaschinski, D. Hamerlijnck, Janelle Goins, J. Peterson, Jessica M. Scott, L. Delbecque, Paola Kruger, Adit Angi Duane Janine Ann Jeanette Jennifer Marta Olga Bassi Gillen Sunwold Reed Ryan Preston Garcia Zvon, A. Bassi, Angi Gillen, Duane Sunwold, Janine Ann Reed, Jean Ryan, J. Preston, Marta Garcia, O. Zvonareva, R. Camp, Ronella Grootens, Séverine Wollenschneider, Thierry Escudier   +46 more
semanticscholar   +1 more source

If someone cares about you, you are more apt to come around: improving HIV care engagement by strengthening the patient-provider relationship. [PDF]

, 2018
Purpose:The patient-provider relationship is a central factor that can promote or hinder long-term engagement in care among people living with chronic illnesses.
Christopoulos, Katerina A, Johnson, Mallory O, Koester, Kimberly A, Neilands, Torsten B, Sauceda, John A, Wood, Troy J   +5 more
core  

A Quality Improvement Initiative to Standardize Pneumocystis jirovecii Pneumonia Prophylaxis in Pediatric Patients With Solid Tumors

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric patients with extracranial solid tumors (ST) receiving chemotherapy are at an increased risk for Pneumocystis jirovecii pneumonia (PJP). However, evidence guiding prophylaxis practices in this population is limited. A PJP‐related fatality at our institution highlighted inconsistent prescribing approaches and concerns about
Kriti Kumar, Denise M. Connolly, Ellen Kellington, Elyse Zelunka, Karla Kerrigan, Furqan Shaikh, Paul C. Nathan, Meredith S. Irwin, Sarah Cohen‐Gogo   +8 more
wiley   +1 more source

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Patient engagement in cancer research from the patient's perspective.

Future Oncology, 2021
Patient engagement in cancer research involves the inclusion of patient voices into research to ensure knowledge generated will improve the lives of all cancer patients. Patients involved in research have an interest in science, an experience with cancer
Patricia A Spears
semanticscholar   +1 more source

How do healthcare professionals working in accountable care organisations understand patient activation and engagement? Qualitative interviews across two time points. [PDF]

, 2018
ObjectiveIf patient engagement is the new 'blockbuster drug' why are we not seeing spectacular effects? Studies have shown that activated patients have improved health outcomes, and patient engagement has become an integral component of value-based ...
Elwyn, Glyn, Fisher, Elliott, Mishra, Manish K, Rodriguez, Hector P, Saunders, Catherine H, Shortell, Stephen M   +5 more
core  

Personalizing the Pediatric Hematology/Oncology Fellowship: Adapting Training for the Next Generation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The pediatric hematology‐oncology fellowship training curriculum has not substantially changed since its inception. The first year of training is clinically focused, and the second and third years are devoted to scholarship. However, this current structure leaves many fellows less competitive in the current job market, resulting in ...
Scott C. Borinstein, Melissa J. Rose, Scott Moerdler, Richard Ho   +3 more
wiley   +1 more source

Seeing the Invisible Resiliency (STIR): Chronic Autoimmune Conditions and Post‐Secondary Education Experiences in Young Adulthood

Health Expectations
Introduction Young adults with chronic autoimmune conditions face unique and often overlooked challenges in post‐secondary education due to the invisible and unpredictable nature of these conditions.
Samantha A. Morin, Angelina Horta, Katelyn Greer, Parveen Priya Rai, Haley Gross, Raegan Reiter, Ingrid Nielssen, Marcia Bruce, Kim Giroux, Deborah A. Marshall   +9 more
doaj   +1 more source

Adult Experiences with Hospitalization in Alberta, Canada During the COVID-19 Pandemic: A Comparative Cross-Sectional Study

Journal of Patient Experience, 2022
Little is known about the experiences of those hospitalized during the COVID-19 pandemic in Canada. Our aims were to (a) report on the experiences, (b) compare with historical results, and (c) assess for potential monthly differences of patients ...
Kyle A Kemp PhD, Paul Fairie PhD, Brian J Steele BA (Hons), Maria J Santana MPharm, PhD   +3 more
doaj   +1 more source