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The public and patient involvement imperative in Ireland: Building on policy drivers
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle +9 more
doaj +1 more source
Patient involvement in selection of immunosuppressive regimen following transplantation. [PDF]
Transplantation has made a considerable difference to the lives of many patients. However, feedback from patients indicates that although having a transplant is a hugely positive experience, having to take medications indefinitely is one of the biggest ...
MacPhee IA +7 more
core +1 more source
Correction to: Abstracts from the NIHR INVOLVE Conference 2017
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie +11 more
doaj +1 more source
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce +13 more
doaj +1 more source
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes +7 more
doaj +1 more source
ReseArch with Patient and Public invOlvement: a RealisT evaluation - the RAPPORT study [PDF]
Background Patient and public involvement (PPI) is a prerequisite for many funding bodies and NHS research ethics approval. PPI in research is defined as research carried out with or by the public rather than to, about or for them.
Poland, F. +36 more
core +2 more sources
Call for Submissions - Special Issue July 2019: The Role of Technology and Innovation in Patient Experience [PDF]
Patient Experience Journal (PXJ) is excited to announce the call for submissions for its July 2019 special issue on the topic of the role of technology in patient & family experience.
Journal, Patient Experience +1 more
core +1 more source
Background In the European Union (EU), discrimination based on racial and ethnic origin is prohibited under the Racial Equality Directive. Ireland is one of only three EU countries where a legal duty of equality data collection is placed on public bodies.
Ailish Hannigan +6 more
doaj +1 more source
Call for Submissions. Special Issue – July 2018: Patient & Family Experience in Children’s Hospitals and Pediatric Care [PDF]
Patient Experience Journal (PXJ) is excited to announce a call for submission for its special issue scheduled for July 2018 on the topic of patient & family experience in children’s hospitals and pediatric care.
Journal, Patient Experience +1 more
core +1 more source
Introduction The current service metrics used to evaluate quality in emergency care do not account for specific healthcare outcome goals for older people living with frailty.
James David van Oppen +10 more
doaj +1 more source

