Results 41 to 50 of about 5,093,417 (249)

Patients and public are important stakeholders in health technology assessment but the level of involvement is low – a call to action

Research Involvement and Engagement, 2021
Background Health technology assessment (HTA) agencies have an important role in the evaluation and approval of new technologies. They determine their value within a health system so to promote equitable, quality care with available healthcare resources.
Janet L. Wale, Samuel Thomas, Dominique Hamerlijnck, Ronald Hollander   +3 more
doaj   +1 more source

Solid Pseudopapillary Neoplasm of the Pancreas in Children and Adolescents: Expert Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Solid pseudopapillary neoplasm of the pancreas (SPN) is a rare low‐grade malignant exocrine pancreatic tumor, mostly discovered during the second decade of life in females, with a very good prognosis, provided microscopically complete surgical excision is achieved.
Sabine Irtan, Michael Abele, Calogero Virgone, Michaela Kuhlen, Ricardo Lopez‐Almarez, Tal Ben‐Ami, Ewa Bien, Maja Cesen, Malgorzata A. Krawczyk, Andrea Ferrari, Gianni Bisogno, Yves Reguerre, Dominik T. Schneider, Louise Galmiche, Jorg Fuchs, Sarah Braungart, Bilgehan Yalcin, Ines B. Brecht, Daniel Orbach   +18 more
wiley   +1 more source

Primary care-led commissioning and public involvement in the English National Health Service. Lessons from the past. [PDF]

, 2014
Background: Patient and Public involvement (PPI) in health care occupies a central place in Western democracies. In England, this theme has been continuously prominent since the introduction of market reforms in the early 1990s.
Peckham, Stephen, Wilson, Patricia, Wilson, Patricia M., Petsoulas, Christina, Smiddy, Jane, Smiddy, J., Petsoulas, C.   +6 more
core   +2 more sources

Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process

Research Involvement and Engagement
Background Patient and public involvement in health-related research is a new discipline in Denmark. In 2021, a national conference titled 'Patient and Public Involvement in Complex Intervention Research' provided a forum for discussion between patient ...
Pernille Christiansen Skovlund, Jeanette Finderup, Sanne Aabo, Flemming Jensen, Henning Søndergaard, Lotte Ørneborg Rodkjær   +5 more
doaj   +1 more source

Characteristics and general practice resource use of people with comorbid cancer and dementia in England: a retrospective cross-sectional study

BMC Primary Care, 2022
Background Cancer and dementia are common in older people and management of the conditions as comorbidities can be challenging, yet little is known about the size or characteristics of this group.
Michelle Collinson, Ellen Mason, Rachael Kelley, Alys Griffiths, Laura Ashley, Ann Henry, Hayley Inman, Fiona Cowdell, June Hennell, Liz Jones, Maria Walsh, Margaret Ogden, Amanda Farrin, Claire Surr   +13 more
doaj   +1 more source

Ovarian Sex Cord Stromal Tumors in Children and Adolescents—The European Standard Clinical Practice Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT As part of the European Cooperative Study Group for Paediatric Rare Tumours initiative, we developed standard clinical practice guidelines for ovarian sex cord stromal tumors, based on comprehensive national and international cohort analyses, literature review, and a final expert consensus conference.
Dominik T. Schneider, Kris‐Ann Schultz, Nora Schnitzler, Michael Abele, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Ines B. Brecht, Maja Cesen, Andrea Ferrari, Michaela Kuhlen, Malgorzata A. Krawczyk, Ricardo Lopez‐Almaraz, Yves Reguerre, Calogero Virgone, Daniel Orbach   +15 more
wiley   +1 more source

Evidence‐Informed Multidisciplinary Consensus Guidance for the Psychosocial Care of Adolescents With High‐Risk Cancer: Recommendations From the Italian Association of Pediatric Hematology and Oncology

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with high‐risk cancer face complex developmental, psychosocial, and ethical challenges that extend beyond disease‐directed treatment. Although international recommendations exist for communication, psychosocial care, pediatric palliative care, survivorship, and shared decision‐making, these have largely evolved within ...
Johanna M. C. Blom, Dorella Scarponi, Giulia Zucchetti, Teresa Perillo, Maria Montanaro, Elisa Marconi, Chiara Rutigliano, Paolo Colavero, Paola Quarello, Marina Bertolotti, Monica Cellini, Carlo Clerici, Maurizio Mascarin, Francesca Bomben, Andrea Ferrari, the expert workgroup   +15 more
wiley   +1 more source

Bridging the Loneliness Gap: Depression, Connectivity, and Isolation in Pediatric Oncology Patients and Their Peers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Loneliness is associated with adverse physical and mental health outcomes and remains understudied in children and adolescents undergoing cancer therapy. Pediatric oncology patients may be at increased risk due to medical isolation and disruption of social networks.
Charlotte N. Stahlfeld, Scott H. Maurer, Michelle D. Watkinson, John Nury, Elise Barberis, Molly C. Mack   +5 more
wiley   +1 more source

Valuing patient and public involvement in research

, 2014
Patient and public involvement is now mandatory in funding applications for most health sciences research.
Sutton, Emma, Maguire, Kath, Stevens, Shirley, Williams-Yesson, Barbara   +3 more
core   +4 more sources

Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement

Research Involvement and Engagement
Background Patient and public involvement (PPI) in mental health research is essential but presents unique challenges, particularly when engaging adults with severe mental illness (SMI).
Emily Shoesmith, Petal Petersen Williams, Jennifer Sweetman, Lisa Huddlestone, Jodi Pervin, Simon Hough, Susan Croft, Steven Dexter, Coleen Scothorne, Elena Ratschen   +9 more
doaj   +1 more source