Results 21 to 30 of about 529,906 (296)

ART in Europe, 2016: results generated from European registries by ESHRE

open access: yesHuman Reproduction Open, 2020
STUDY QUESTION What are the reported data on cycles in ART, IUI and fertility preservation (FP) interventions in 2016 as compared to previous years, as well as the main trends over the years?
Orion Eduard Heinz Elena Oleg Kris Christine Devleta Ire Gliozheni Hambartsoumian Strohmer Petrovskaya Tish   +70 more
semanticscholar   +1 more source

Collection and Reporting of Patient-reported Outcome Measures in Arthroplasty Registries: Multinational Survey and Recommendations

open access: yesClinical Orthopaedics and Related Research, 2021
Background Patient-reported outcome measures (PROMs) are validated questionnaires that are completed by patients. Arthroplasty registries vary in PROM collection and use. Current information about registry collection and use of PROMs is important to help
E. Bohm   +14 more
semanticscholar   +1 more source

Providing quality data in health care - almost perfect inter-rater agreement in the Norwegian tonsil surgery register

open access: yesBMC Medical Research Methodology, 2019
Background The Norwegian Tonsil Surgery Register (NTSR) was launched in January 2017. The purpose of the register is to present data on tonsil surgery to facilitate improvements in patient care.
Siri Wennberg   +4 more
doaj   +1 more source

Reducing post-tonsillectomy haemorrhage: a multicentre quality improvement programme incorporating video-based cold technique instruction

open access: yesBMJ Open Quality, 2022
Objective Data from the Norwegian Tonsil Surgery Register (NTSR) showed large differences between the hospitals in Norway in the readmission rate due to post-tonsillectomy haemorrhage (rrPTH; range, 0%–25%; national average, 8%).
Vegard Bugten   +3 more
doaj   +1 more source

Changing cancer survival in China during 2003-15: a pooled analysis of 17 population-based cancer registries.

open access: yesLancet Global Health, 2018
BACKGROUND From 2003 to 2005, standardised 5-year cancer survival in China was much lower than in developed countries and varied substantially by geographical area.
H. Zeng   +43 more
semanticscholar   +1 more source

North American Association of Central Cancer Registries

open access: yesDefinitions, 2020
This information was prepared on behalf of NAACCR members by individuals active in national, state, regional and hospital cancer registry organizat ions in consultation with legal counsel and with information provided by US federal officials involved in ...
H. Howe
semanticscholar   +1 more source

Rare lysosomal disease registries: lessons learned over three decades of real-world evidence

open access: yesOrphanet Journal of Rare Diseases, 2022
Lysosomal storage disorders (LSD) are rare diseases, caused by inherited deficiencies of lysosomal enzymes/transporters, that affect 1 in 7000 to 1 in 8000 newborns.
P. K. Mistry   +6 more
doaj   +1 more source

Registry stakeholders

open access: yesEFORT Open Reviews, 2019
Clinical registries are health information systems, which have the mission to collect multidimensional real-world data over the long term, and to generate relevant information and actionable knowledge to address current serious healthcare problems. This article provides an overview of clinical registries and their relevant stakeholders, focussing on ...
Lübbeke, A, Carr, AJ, Hoffmeyer, P
openaire   +4 more sources

Global surveillance of cancer survival 1995-2009: analysis of individual data for 25,676,887 patients from 279 population-based registries in 67 countries (CONCORD-2).

open access: yesThe Lancet, 2015
BACKGROUND Worldwide data for cancer survival are scarce. We aimed to initiate worldwide surveillance of cancer survival by central analysis of population-based registry data, as a metric of the effectiveness of health systems, and to inform global ...
C. Allemani   +22 more
semanticscholar   +1 more source

Successful weight loss maintenance: A systematic review of weight control registries

open access: yesObesity Reviews, 2020
Weight loss maintenance is a major challenge for obesity treatment. Weight control registries can be useful in identifying psychological and behavioural factors that could contribute to better long‐term success. The objective of this study is to describe
Catarina Paixão   +9 more
semanticscholar   +1 more source

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