Results 11 to 20 of about 4,489 (215)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

La consommation d'eau en France : historique, tendances contemporaines, déterminants

Sciences, Eaux & Territoires, 2013
Si la consommation d'eau des ménages augmentait régulièrement en France avant les années 90, elle a amorcé ensuite une stabilisation puis un déclin. L'objet de cet article est d'abord de décrire les tendances passées et contemporaines de ce phénomène ...
M. MONTGINOUL
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source

Les ressorts matériels des positionnements éthiques des professionnels des souvenirs numériques

Interfaces Numériques
À partir d’une série d’entretiens et d’un corpus de documents, l’article analyse la manière dont les professionnels qui produisent et promeuvent des souvenirs numériques mobilisent des discours éthiques pour défendre leurs produits à travers deux ...
Rémi Rouge
doaj   +1 more source

Information Science: Science Or Social Science?

, 2017
Collection, selection, processing, management, and dissemination of information are the main and ultimate role of Information Science and similar studies such as Information Studies, Information Management, Library Science, and Communication Science and so on.
Sreeramana Aithal, Paul P.K.,, Bhuimali, A.   +2 more
openaire   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters, Ji Yun Tark, Tiffany M. Chambers, Tania A. Desrosiers, Michael E. Scheurer, Charles Shumate, Wendy N. Nembhard, Mahsa M. Yazdy, Eirini Nestoridi, Amanda E. Janitz, Jean Paul Tanner, Russell S. Kirby, Jason L. Salemi, Yao Yu, Chad D. Huff, Sharon E. Plon, Philip J. Lupo, Jeremy M. Schraw   +17 more
wiley   +1 more source

Les Doctoriales francophones en sciences sociales de l’eau : une édition rennaise 2023 sous le signe de l’adaptation des sociétés aux changements hydro-climatiques - Introduction

Sciences, Eaux & Territoires
Cet article introduit le numéro spécial de la revue Sciences Eaux & Territoires consacré aux Doctoriales francophones en sciences sociales de l’eau ayant eu lieu à Rennes en 2023. Photo d'entête : © Alain Vermeuleun - Adobe Stock 
François DESTANDEAU, Elias GANIVET, Emmanuelle HELLIER, Guillaume PAYSANT   +3 more
doaj   +1 more source

Éthique procédurale, entre petits arrangements et transgression: comparaison Brésil-France

Fractal: Revista de Psicologia, 2015
Résumé Dans une approche socio-historique et à partir de nos propres expériences, cet article se propose de comprendre les enjeux relatifs à l’éthique procédurale en France et au Brésil.
Severine Colinet, Izabel Friche Passos
doaj   +1 more source

La légitimité des institutions pénales : un programme démocratique et scientifique

Lien Social et Politiques, 2020
Le diagnostic d’une crise de légitimité de la police a été posé à la fin du siècle dernier, d’abord empiriquement à travers le développement de phénomènes émeutiers, puis par une importante production de rapports publics en France et dans le monde.
Anne Wuilleumier
doaj   +1 more source