Results 71 to 80 of about 28,626 (196)

Return of Research Results to Participants in Longitudinal Cohort Studies in Health Research: Findings From 24 Cohorts of the Amsterdam Cohort Hub

Health Expectations, Volume 29, Issue 5, October 2026.
ABSTRACT Background Returning research results to participants is increasingly recognised as part of participant‐centred health research. How this is implemented in longitudinal cohort studies is not yet well characterised. This study aims to provide a descriptive overview of current result return practices across diverse cohort studies in the ...
Yuwei Qi, Marieke F. van Wier, Femke Jansen, Marleen van der Horst, Charles Agyemang, Elias Balt, Marieke M. T. Blom, Cyrina Brouwer, Jos A. Bosch, Anouk den Braber, Felix P. Chilunga, Udi Davidovich, Merijn Eikelenboom, Awa A. Gassama, Mirjam I. Geerlings, Janneke Heijne, Melany Horsfall, Martijn Huisman, Kim M. Jonkman, Joep Killestein, Tamira K. Klooker, Anitra D. M. Koopman, Sophia E. Kramer, Jonathan Krikeb, Franca H. Leeuwis, Lannie Ligthart, Saskia Y. M. Mérelle, Ghiselinde B. G. M. Meijs, Tom Molenaar, Mirjam Oosterman, Patricia van Oppen, Nadine P. G. Paans, Brenda W. J. H. Penninx, Didi Rhebergen, Femke Rutters, Yola Sol, Mandy Spaan, Eva M. M. Strijbis, Geertje Marije Takkenberg, Betty M. Tijms, Natasja D. Vijfschagt, Tanja G. M. Vrijkotte, Marlies J. Visser, Eco J. C. de Geus, Cécile R. L. Boot, Emiel O. Hoogendijk   +45 more
wiley   +1 more source

Variability in Stroke Journeys: A Qualitative Study of Experiences of Persons With Stroke

Health Expectations, Volume 29, Issue 5, October 2026.
ABSTRACT Background Stroke recovery is highly individual and often involves multiple transitions across healthcare settings. While standardised stroke pathways aim to improve quality of care, less is known about how persons with stroke experience person‐centred practice throughout their stroke journeys. Aim To explore how persons with stroke experience
Asma Sabri, Heidi Dombestein, Peter Dieckmann, Stephen J. M. Sollid, Karina Aase   +4 more
wiley   +1 more source

A relational analysis of an invisible illness: A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis and their support needs [PDF]

, 2020
Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is indicated by prolonged, medically unexplained fatigue (amongst other symptoms), not alleviated by rest, and causing substantial disability.
Little, P., Ridge, Damien T., Ridge, Damien, Pilkington, K., Little, Paul, Corp, N., McDermott, C., McDermott, Clare, Igwesi-Chidobe, Chinonso, Babatunde, O., Cheshire, A., Pilkington, Karen, Chew-Graham, Carolyn A., Chew-Graham, C.   +13 more
core   +1 more source

Differential Characteristics and Comparison Between Long-COVID Syndrome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Biomedicines
Long-COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome are disabling diseases characterised by ongoing fatigue, post-exertional malaise, cognitive impairment, and autonomic dysfunction.
Mariya Ivanovska, Maysam Salim Homadi, Gergana Angelova, Hristo Taskov, Marianna Murdjeva   +4 more
doaj   +1 more source

Medically Documenting Disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Cases

Frontiers in Pediatrics, 2019
Patients with severe myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) experience debilitating physical and cognitive symptoms, which often result in the need to file disability claims.
Barbara B. Comerford, Richard Podell
doaj   +1 more source

Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning

Neuropsychiatric Disease and Treatment, 2022
Nicole Porter *, Leonard A Jason ⫎nter for Community Research, DePaul University, Chicago, IL, USA*These authors contributed equally to this workCorrespondence: Leonard A Jason, Center for Community Research, DePaul University, 990 W ...
Porter N, Jason LA
doaj  

Pediatric chronic fatigue syndrome: current perspectives

Pediatric Health, Medicine and Therapeutics, 2018
Esther CrawleyCentre for Child and Adolescent Health, Bristol Medical School, University of Bristol, Bristol, UKAbstract: Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with a wide range of ...
Crawley E
doaj  

A Multicenter Blinded Analysis Indicates No Association between Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and either Xenotropic Murine Leukemia Virus-Related Virus or Polytropic Murine Leukemia Virus

mBio, 2012
The disabling disorder known as chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) has been linked in two independent studies to infection with xenotropic murine leukemia virus-related virus (XMRV) and polytropic murine leukemia virus (pMLV).
Harvey J. Alter, Judy A. Mikovits, William M. Switzer, Francis W. Ruscetti, Shyh-Ching Lo, Nancy Klimas, Anthony L. Komaroff, Jose G. Montoya, Lucinda Bateman, Susan Levine, Daniel Peterson, Bruce Levin, Maureen R. Hanson, Afia Genfi, Meera Bhat, HaoQiang Zheng, Richard Wang, Bingjie Li, Guo-Chiuan Hung, Li Ling Lee, Stephen Sameroff, Walid Heneine, John Coffin, Mady Hornig, W. Ian Lipkin   +24 more
doaj   +1 more source

Myalgic encephalomyelitis. [PDF]

BMJ, 1989
  +10 more sources

Myalgic Encephalomyelitis or What? The International Consensus Criteria

Diagnostics, 2018
Myalgic encephalomyelitis (ME) is a neuromuscular disease with two distinctive types of symptoms (muscle fatigability or prolonged muscle weakness after minor exertion and symptoms related to neurological disturbance, especially of sensory, cognitive ...
Frank Twisk
doaj   +1 more source