Results 21 to 30 of about 15,582,923 (344)

Effect of COVID-19 on patient access to health services for noncommunicable diseases in Latin America: a perspective from patient advocacy organizations

International Journal for Equity in Health, 2022
Background The COVID-19 pandemic has been felt acutely in Latin America with several countries having among the highest numbers of SARS-CoV-2 cases and related deaths.
Meredith H. Kruse, Alessandra Durstine, Dabney P. Evans   +2 more
semanticscholar   +1 more source

Helping patients discuss CINV management : development of a patient charter [PDF]

, 2013
In April 2012, an Expert Group of specialist cancer nurses working in a variety of settings (e.g. chemotherapy delivery, chemotherapy service design, research, nurse leadership and patient information/advocacy) participated in telephone/web-based ...
Dielenseger, Pascale, Fernandez Ortega, Paz, Fernandez Perez, Dolores, Jones, Philippa, Lennan, Elaine, O’Donovan, Eileen, Sharp, Sue, Whiteford, Alison, Wiles, Lilian, Young, Annie M.   +9 more
core   +1 more source

Two decades of patient advocacy. [PDF]

Eur J Neurol
AbstractThe European Federation of Neurological Associations (EFNA) brings together European umbrella organizations of pan‐European neurological patient advocacy groups (www.efna.net) and strives to improve the quality of life of people living with neurological conditions and to work towards relieving the immense social and economic burden on patients,
Baker M, Craven A, Galvin O, Hawrot T, Newton A, Sipido E, Walsh D, Jaarsma J.   +7 more
europepmc   +3 more sources

Patients' advocacy: the development of a service at the State Hospital, Carstairs, Scotland [PDF]

, 2001
Advocacy is part of the process of empowering patients and involving them in the development of services. This paper describes the development of an advocacy service in the State Hospital at Carstairs and explores the issues involved in advocacy in a ...
Jacqueline M. Atkinson, Kirstine MacPherson, Thomas P.F.   +2 more
core   +1 more source

Podcast on Identifying and Understanding Barriers to Care in Underserved Populations With MS in the United States

Neurology and Therapy, 2023
Multiple sclerosis (MS) can affect people from all racial and ethnic backgrounds, but, historically, the incidence of MS in the United States was thought to be highest in White individuals.
Sandra Parawira, Victoria Reese
doaj   +1 more source

Ethics and health care 'underfunding' [PDF]

, 2001
There are continual “crises” in health care systems worldwide as producer and patient groups unify and decry the “underfunding” of health care. Sometimes this cacophony is the self interest of profit seeking producers and often it is advocacy of unproven
Maynard, A.
core   +2 more sources

Breast cancer patient advocacy: A qualitative study of the challenges and opportunities for civil society organizations in low‐income and middle‐income countries

Cancer, 2020
Breast cancer advocacy movements, driven by advocate‐led civil society organizations (CSOs), have proven to be a powerful force for the advancement of cancer control in high‐income countries (HICs).
A. Dvaladze, Darya A. Kizub, A. Cabanes, G. Nakigudde, Bertha Aguilar, J. Zujewski, Catherine Duggan, B. Anderson, R. K. Pritam Singh, J. Gralow   +9 more
semanticscholar   +1 more source

Steps towards collective sustainability in biomedical research [PDF]

, 2018
The optimism surrounding multistakeholder research initiatives does not match the clear view of policies that are needed to exploit the potential of these collaborations.
Abbracchio, Maria Pia, Andreaus, Michele, Battaglia, Mario A., Costa, Ericka, Kapoor, Raj, Lubetzki, Catherine, Matarese, Giuseppe, Ristori, Giovanni, Salvetti, Marco, Zaratin, Paola   +9 more
core   +1 more source

Public health advocacy for the Berlin Declaration on tuberculosis in the former Soviet Union: the view of Médecins Sans Frontières [PDF]

, 2012
To assist international efforts to address major gaps in the availability and accessibility of quality diagnosis and treatment for multi-drug resistant tuberculosis, Médecins Sans Frontières has adapted an approach combining three sets of interlinked ...
Balabanova D., Bonnet M., Brust J.C., Cox H.S., Cox H.S., Cox H.S., Majumdar S.   +6 more
core   +2 more sources

Being a Patient Representative Is More Work Than Being a Patient Advocate—Done Right, It Is Also Likely to Be More Effective

Current Oncology, 2021
For a patient to be effective as a “patient representative” within a health-related organization, work and more than just accepting an honorific title is required.
Richard Wassersug
doaj   +1 more source