Results 11 to 20 of about 722,064 (339)

CPAnet Registry—An International Chronic Pulmonary Aspergillosis Registry [PDF]

Journal of Fungi, 2020
Chronic pulmonary aspergillosis (CPA) is a chronic fungal infection of the lung associated with high morbidity and mortality. The CPA Research network (CPAnet) registry established in 2018 is an international multicenter collaboration aiming to improve CPA knowledge and patient care.
Christian B. Laursen, Jesper Rømhild Davidsen, Lander Van Acker, Helmut J.F. Salzer, Danila Seidel, Oliver A. Cornely, Martin Hoenigl, Ana Alastruey-Izquierdo, Christophe Hennequin, Cendrine Godet, Aleksandra Barac, Holger Flick, Oxana Munteanu, Eva Van Braeckel   +13 more
openaire   +7 more sources

The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: Research potential of two nationwide health-care registries

Scandinavian Journal of Public Health, 2020
In Norway, the Directorate of Health is responsible for two nationwide registries – the Norwegian Patient Registry (NPR) and the Norwegian Registry for Primary Health Care (NRPHC) – which together cover all governmental-funded health care.
I. Bakken, A. M. S. Ariansen, G. Knudsen, Knut Ivar Johansen, S. Vollset   +4 more
semanticscholar   +1 more source

ART in Europe, 2016: results generated from European registries by ESHRE

Human Reproduction Open, 2020
STUDY QUESTION What are the reported data on cycles in ART, IUI and fertility preservation (FP) interventions in 2016 as compared to previous years, as well as the main trends over the years?
Orion Eduard Heinz Elena Oleg Kris Christine Devleta Ire Gliozheni Hambartsoumian Strohmer Petrovskaya Tish, O. Gliozheni, E. Hambartsoumian, H. Strohmer, E. Petrovskaya, O. Tishkevich, K. Bogaerts, C. Wyns, Devleta Balić, I. Antonova, M. Pelekanos, K. Řežábek, J. Marková, J. Lemmen, D. Sõritsa, Mika Gissler, S. Pelkonen, F. Pessione, J. de Mouzon, Andreas Tandler, S. Kalantaridou, J. Urbancsek, G. Kosztolanyi, Hilmar Bjorgvinsson, E. Mocanu, J. Cloherty, G. Scaravelli, R. de Luca, V. Lokshin, S. Karibayeva, Valeria Magomedova, Raminta Baušytė, Ieva Masliukaite, C. Schilling, Jean Calleja-Agius, V. Moshin, T. Motrenko Simic, Dragana Vukićević, J. Smeenk, Zoranco Petanovski, L. Romundstad, A. Janicka, C. Calhaz-Jorge, Joana Maria Mesquita Guimaraes, A. Laranjeira, I. Rugescu, B. Doroftei, V. Korsak, N. Radunović, N. Tabs, I. Virant-Klun, I. C. Sáiz, F. Prados Mondéjar, C. Bergh, M. Weder, M. Buttarelli, M. Primi, H. Ryan, R. Baranowski, M. Gryshchenko, C. Wyns, C. Bergh, C. Calhaz-Jorge, C. De Geyter, M. Kupka, T. Motrenko, I. Rugescu, J. Smeenk, A. Tandler-Schneider, S. Vidaković, V. Goossens   +70 more
semanticscholar   +1 more source

Differences in hip fracture care in Europe: a systematic review of recent annual reports of hip fracture registries

European Journal of Trauma and Emergency Surgery, 2021
Hip fractures are of growing interest due to their increasing number, subsequent functional decline and high institutionalization rate of patients, mortality, and costs. Several process measurements are essential for hip fracture care.
Maic Werner, C. Macke, M. Gogol, C. Krettek, E. Liodakis   +4 more
semanticscholar   +1 more source

Collection and Reporting of Patient-reported Outcome Measures in Arthroplasty Registries: Multinational Survey and Recommendations

Clinical Orthopaedics and Related Research, 2021
Background Patient-reported outcome measures (PROMs) are validated questionnaires that are completed by patients. Arthroplasty registries vary in PROM collection and use. Current information about registry collection and use of PROMs is important to help
E. Bohm, Sarah Kirby, E. Trepman, B. Hallstrom, O. Rolfson, J. Wilkinson, A. Sayers, S. Overgaard, S. Lyman, P. Franklin, J. Dunn, Geke A W Denissen, A. W-Dahl, L. Ingelsrud, R. Navarro   +14 more
semanticscholar   +1 more source

Nine best practices for research software registries and repositories

PeerJ Computer Science, 2022
Scientific software registries and repositories improve software findability and research transparency, provide information for software citations, and foster preservation of computational methods in a wide range of disciplines.
Task Force on Best Practices for Software Registries Al Monteil, Alejandra N. González-Beltrán, Alexandros Ioannidis, A. Allen, Allen Lee, A. Bandrowski, B. Wilson, Bryce D. Mecum, C. Du, Carly B. Robinson, D. Garijo, D. Katz, David Long, Genevieve Milliken, Herv'e M'enager, J. Hausman, J. Spaaks, Katrina Fenlon, K. Vanderbilt, L. Hwang, Lynn Davis, M. Fenner, M. Crusoe, M. Hucka, Mingfang Wu, Neil Philippe Chue Hong, P. Teuben, S. Stall, Stephan Druskat, Ted Carnevale, Thomas E. Morrell   +30 more
semanticscholar   +1 more source

An assessment of the quality of the I-DSD and the I-CAH registries - international registries for rare conditions affecting sex development [PDF]

, 2017
With the proliferation of rare disease registries, there is a need for registries to undergo an assessment of their quality against agreed standards to ensure their long-term sustainability and acceptability.This study was performed to evaluate the I-DSD
Ahmed, S.F., Bryce, J., Jiang, J., Kourime, M., Nixon, R., Rodie, M.   +5 more
core   +1 more source

Registry stakeholders

EFORT Open Reviews, 2019
Clinical registries are health information systems, which have the mission to collect multidimensional real-world data over the long term, and to generate relevant information and actionable knowledge to address current serious healthcare problems. This article provides an overview of clinical registries and their relevant stakeholders, focussing on ...
Lübbeke, A, Carr, AJ, Hoffmeyer, P
openaire   +4 more sources

North American Association of Central Cancer Registries

Definitions, 2020
This information was prepared on behalf of NAACCR members by individuals active in national, state, regional and hospital cancer registry organizat ions in consultation with legal counsel and with information provided by US federal officials involved in ...
H. Howe
semanticscholar   +1 more source

Successful weight loss maintenance: A systematic review of weight control registries

Obesity Reviews, 2020
Weight loss maintenance is a major challenge for obesity treatment. Weight control registries can be useful in identifying psychological and behavioural factors that could contribute to better long‐term success. The objective of this study is to describe
Catarina Paixão, C. Dias, Rui Jorge, E. Carraça, M. Yannakoulia, M. de Zwaan, S. Soini, James O Hill, P. Teixeira, I. Santos   +9 more
semanticscholar   +1 more source