Results 11 to 20 of about 529,906 (296)

Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

Clinical Epidemiology, 2021
The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and ...
K. Laugesen, J. Ludvigsson, M. Schmidt, M. Gissler, U. Valdimarsdóttir, Astrid Lunde, H. Sørensen   +6 more
semanticscholar   +1 more source

A systematic overview of rare disease patient registries: challenges in design, quality management, and maintenance

Orphanet Journal of Rare Diseases, 2023
Patient registries serve to overcome the research limitations inherent in the study of rare diseases, where patient numbers are typically small. Despite the value of real-world data collected through registries, adequate design and maintenance are ...
I. C. Hageman, I. V. van Rooij, I. de Blaauw, M. Trajanovska, S. King   +4 more
semanticscholar   +1 more source

Pregnancy and neonatal outcomes of COVID‐19: coreporting of common outcomes from PAN‐COVID and AAP‐SONPM registries

Ultrasound in Obstetrics and Gynecology, 2021
Few large cohort studies have reported data on maternal, fetal, perinatal and neonatal outcomes associated with severe acute respiratory syndrome coronavirus 2 (SARS‐CoV‐2) infection in pregnancy.
E. Mullins, M. Hudak, J. Banerjee, Trace Getzlaff, J. Townson, K. Barnette, R. Playle, T. Bourne, C. Lees   +8 more
semanticscholar   +1 more source

Prevalence of Systemic Lupus Erythematosus in the United States: Estimates From a Meta‐Analysis of the Centers for Disease Control and Prevention National Lupus Registries

Arthritis & Rheumatology, 2021
Epidemiologic data on systemic lupus erythematosus (SLE) are limited, particularly for racial/ethnic subpopulations in the US. This meta‐analysis leveraged data from the Centers for Disease Control and Prevention (CDC) National Lupus Registry network of ...
P. Izmirly, Hilary B. Parton, Lu Wang, W. McCune, S. S. Lim, Cristina Drenkard, E. Ferucci, M. Dall'Era, Caroline Gordon, Charles G. Helmick, E. Somers   +10 more
semanticscholar   +1 more source

ART in Europe, 2015: results generated from European registries by ESHRE†

Human Reproduction Open, 2020
STUDY QUESTION What are the European trends and developments in ART and IUI in 2015 as compared to previous years? SUMMARY ANSWER The 19th ESHRE report on ART shows a continuing expansion of treatment numbers in Europe, and this increase, the variability
C. De Geyter, C. Calhaz-Jorge, M. Kupka, C. Wyns, E. Mocanu, T. Motrenko, G. Scaravelli, J. Smeenk, S. Vidaković, V. Goossens, Orion Eduard Heinz Elena Oleg Kris Christine Devleta San Gliozheni Hambartsoumian Strohmer Petrovskaya Tish, O. Gliozheni, E. Hambartsoumian, H. Strohmer, E. Petrovskaya, O. Tishkevich, K. Bogaerts, C. Wyns, Devleta Balić, S. Sibinčić, I. Antonova, M. Pelekanos, K. Řežábek, J. Marková, J. Lemmen, D. Sõritsa, M. Gissler, S. Pelkonen, F. Pessione, J. de Mouzon, A. Tandler-Schneider, S. Kalantaridou, J. Urbancsek, G. Kosztolányi, Hilmar Bjorgvinsson, E. Mocanu, J. Cloherty, G. Scaravelli, R. De Luca, V. Lokshin, S. Karibayeva, Valeria Magomedova, Raminta Baušytė, Leva Masliukaite, Zoranco Petanovski, Jean Calleja-Agius, V. Moshin, T. Simic, Dragana Vukićević, J. Smeenk, L. Romundstad, A. Janicka, C. Calhaz-Jorge, A. Laranjeira, I. Rugescu, B. Doroftei, V. Korsak, N. Radunović, N. Tabs, I. Virant-Klun, I. C. Sáiz, Fernando J. Prados Mondéjar, C. Bergh, E. Berger-Menz, M. Weder, H. Ryan, R. Baranowski, M. Gryshchenko   +67 more
semanticscholar   +1 more source

Differences in hip fracture care in Europe: a systematic review of recent annual reports of hip fracture registries

European Journal of Trauma and Emergency Surgery, 2021
Hip fractures are of growing interest due to their increasing number, subsequent functional decline and high institutionalization rate of patients, mortality, and costs. Several process measurements are essential for hip fracture care.
Maic Werner, C. Macke, M. Gogol, C. Krettek, E. Liodakis   +4 more
semanticscholar   +1 more source

CPAnet Registry—An International Chronic Pulmonary Aspergillosis Registry [PDF]

Journal of Fungi, 2020
Chronic pulmonary aspergillosis (CPA) is a chronic fungal infection of the lung associated with high morbidity and mortality. The CPA Research network (CPAnet) registry established in 2018 is an international multicenter collaboration aiming to improve CPA knowledge and patient care.
Christian B. Laursen, Jesper Rømhild Davidsen, Lander Van Acker, Helmut J.F. Salzer, Danila Seidel, Oliver A. Cornely, Martin Hoenigl, Ana Alastruey-Izquierdo, Christophe Hennequin, Cendrine Godet, Aleksandra Barac, Holger Flick, Oxana Munteanu, Eva Van Braeckel   +13 more
openaire   +7 more sources

The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: Research potential of two nationwide health-care registries

Scandinavian Journal of Public Health, 2020
In Norway, the Directorate of Health is responsible for two nationwide registries – the Norwegian Patient Registry (NPR) and the Norwegian Registry for Primary Health Care (NRPHC) – which together cover all governmental-funded health care.
I. Bakken, A. M. S. Ariansen, G. Knudsen, Knut Ivar Johansen, S. Vollset   +4 more
semanticscholar   +1 more source

Nine best practices for research software registries and repositories

PeerJ Computer Science, 2022
Scientific software registries and repositories improve software findability and research transparency, provide information for software citations, and foster preservation of computational methods in a wide range of disciplines.
Task Force on Best Practices for Software Registries Al Monteil, Alejandra N. González-Beltrán, Alexandros Ioannidis, A. Allen, Allen Lee, A. Bandrowski, B. Wilson, Bryce D. Mecum, C. Du, Carly B. Robinson, D. Garijo, D. Katz, David Long, Genevieve Milliken, Herv'e M'enager, J. Hausman, J. Spaaks, Katrina Fenlon, K. Vanderbilt, L. Hwang, Lynn Davis, M. Fenner, M. Crusoe, M. Hucka, Mingfang Wu, Neil Philippe Chue Hong, P. Teuben, S. Stall, Stephan Druskat, Ted Carnevale, Thomas E. Morrell   +30 more
semanticscholar   +1 more source

Effectiveness of Thrombectomy in Stroke According to Baseline Prognostic Factors: Inverse Probability of Treatment Weighting Analysis of a Population-Based Registry [PDF]

Journal of Stroke, 2021
Background and Purpose  In real-world practice, the benefit of mechanical thrombectomy (MT) is uncertain in stroke patients with very favorable or poor prognostic profiles at baseline.
Salvatore Rudilosso, José Ríos, Alejandro Rodríguez, Meritxell Gomis, Víctor Vera, Manuel Gómez-Choco, Arturo Renú, Núria Matos, Laura Llull, Francisco Purroy, Sergio Amaro, Mikel Terceño, Víctor Obach, Joaquim Serena, Joan Martí-Fàbregas, Pedro Cardona, Carlos Molina, Ana Rodríguez-Campello, David Cánovas, Jerzy Krupinski, Xavier Ustrell, Ferran Torres, Luis San Román, Mercè Salvat-Plana, Francesc Xavier Jiménez-Fàbrega, Ernest Palomeras, Esther Catena, Carla Colom, Dolores Cocho, Juanjo Baiges, Josep Maria Aragones, Gloria Diaz, Xavier Costa, María Cruz Almendros, Maria Rybyeba, Miquel Barceló, Dolors Carrión, Matilde Núria Lòpez, Eduard Sanjurjo, Natalia Pérez de la Ossa, Xabier Urra, Ángel Chamorro, for the Catalan Stroke Code and Reperfusion (Cat-SCR) Consortium   +42 more
doaj   +1 more source